Q&A: Does anyone know of a good online support group for Amyloidosis?

Question by aussygirl87: Does any person know of a good online support group for Amyloidosis?
I am a 22yr old female recently diagnosed with Amyloidosis, I have been looking for a local or nearby support group and I can't discover 1. So now I'm looking for a excellent on-line support group.


Greatest answer:

Answer by Patio of Enjoyable
I was caregiver and advocate for my sister when she went through treatment for amyloidosis at the Fred Hutchins Center in the Seattle Cancer Care Alliance ( SCCA ) last fall. The condition is really rare, there may possibly not be a support group in existence for it.

http://www.seattlecca.org/diseases/amyloidosis.cfm

http://www.mayoclinic.org/amyloidosis/

http://www.fhcrc.org/patient/treatment/trials/index.php?atn=detail&id=6961

http://www.clinicaltrials.gov/ct/search?term=NCT00064337

http://www.seattlecca.org/

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